Special Education Placements

Sadie
An 11-year-old girl with dyslexia attends her public school’s language program and a special education private day school for students with language-based
learning disabilities.
Child & Family Background Information
Sadie’s parents were concerned about her delayed language development compared to her peers, even as a toddler. She received Early Intervention services from a speech/language pathologist (SLP) to help her articulate words and communicate with others. Once she started kindergarten, Sadie continued to lag behind her peers in terms of early reading and writing skills, such as recognizing letters. Her teacher also noticed that Sadie sometimes had a hard time focusing and paying attention in class. During the fall of 2nd grade, all students were screened for reading fluency (how smoothly and quickly they can read out loud). Each student sat in front of a computer screen and were timed as they read a paragraph into a small microphone. Sadie scored in the bottom percentile, meaning that her reading fluency was well below that of the vast majority of kids her age. Some services were provided by the school’s reading specialist, but this only brought about mild improvements. Sadie’s parents decided it was time to submit a written request to the school to have Sadie formally evaluated. Once completed, Sadie was determined eligible for an IEP under the primary disability category of “Learning Disability in Reading,” with additional categories of “Learning Disability in Written Expression,” and “Communication Disability” to address Sadie’s slowed verbal output when talking with others. Teachers reported that Sadie took a long time to answer teachers’ questions, even when she had raised her hand and knew the answers. Her parents described the same difficulty at home around non-academic topics. For example, she needed a very long time to answer basic questions such as “what would you like for snack?” For the next 2 years, Sadie received services from a reading specialist and SLP both within and outside of the general education classroom, individually and in small groups. Her teachers thought she was making adequate progress on her IEP goals, but her parents were not seeing meaningful gains in her communication skills at home or with peers. By the middle of 4th grade, Sadie was completely miserable in school and socially isolated because of her inability to keep up with the faster pace of peer conversations. Most Sunday evenings, she would become withdrawn and tearful, sad that the weekend was ending and dreading another week of school. Getting up each day and helping her with homework after school were their most tense moments as a family. Sadie had trouble keeping track of homework assignments. Her parents described, “We spent about an hour calling and emailing other parents to find out what was due, and asking them to scan homework sheets that she had left at school. We worried our friends were getting sick of our requests!” But the challenges did not end there. Once Sadie had the correct homework to complete, she became easily confused and overwhelmed by the work. Her parents described homework time as “torture for her and us...we dreaded going through her backpack to sort out the mess of papers, which is usually when the tears would start...she would cry on and off during the two hours or more of homework that was supposed to take 30-40 minutes. It was awful!” Although Sadie’s parents were in daily communication with her teacher and special education team, none of the strategies and services offered to bridge the gap between home and school were successful. Sadie reported that she felt completely lost at school. She had trouble following the fast pace of instruction, missing important information throughout the day. Having an aide assist her with notetaking did little to help Sadie learn the content taught to the rest of the class. Her parents described, “Sadie thought there was something seriously wrong with her, and that she was stupid. It was heartbreaking!”
How the Placement Occurred
During the summer after 4th grade, Sadie’s parents were worried that 5th grade would be as difficult, if not worse, compared to 4th grade. There were no signs that the current level of IEP services would be sufficient to meet Sadie’s academic needs and help restore her love of learning and school - not to mention her confidence and self-esteem, which were typical prior to 4th grade. That summer, Sadie’s parents scheduled a private neuropsychological testing to determine why she was struggling so much in school. In contrast to the school’s evaluation, which rated Sadie’s reading as one year behind grade level, the neuropsychologist had rated her reading as three years behind! Sadie received a formal diagnosis of dyslexia, which her parents learned was not among the list of disability categories used for IEP eligibility. Sadie was also diagnosed with attention and executive functioning weaknesses, areas that were addressed in her IEP as “study skills.” The testing also found that her overall intellectual abilities were at a higher level than when tested by the school psychologist. Her parents attributed the previous underestimation of her abilities to how anxious Sadie was in school all the time. She may have felt more at ease when tested outside of school, which enabled a more accurate picture of her true abilities. Her parents stated, “It was wonderful for Sadie to hear that she was smart!” The neuropsychologist also recommended that Sadie receive individual therapy to help her manage the enormous amount of stress she was experiencing. When the IEP Team met in September to review this report, they recommended that Sadie be placed in the district’s Language Program, a substantially separate classroom of 6-8 children with dyslexia and other language-based learning disabilities. This meant that she would only be placed in the general education classroom for art, gym, and music, but none of the main subject areas. The downside was that the program was located at a different elementary school within the district. Sadie had close friends who attended her old school, so at first she was reluctant to try the new program. After Sadie and her family discussed their hopes for a better school experience, they agreed it was a good place to start. The neuropsychologist agreed but mentioned that some children respond well to these classrooms while others require more specialized teaching methods, such as those offered at private special education day schools. Sadie’s parents decided to consult with an attorney for guidance, in the event that the new program was not all that they hoped. They were scared about what 5th grade might bring and wanted to be prepared. The new classroom seemed promising in the first few weeks of school, but before too long, 5th grade began to feel a lot like 4th grade. Sadie became increasingly frustrated, felt stupid much of the time, and at times ran out of the classroom in tears. Their attorney advised Sadie’s parents to request that their neuropsychologist conduct a classroom observation to determine whether the recommendations from his report were being followed. He concluded that the new program met some of Sadie’s needs: small class size, some multi-sensory, language-based teaching, and Orton Gillingham tutoring. However, there were a number of ways that the program fell short. For example, the peer group was not an appropriate match for Sadie’s more advanced cognitive abilities. Sadie’s complex profile meant that she was 3 years behind in reading ability, but she was functioning at grade level in other academic areas. The language program taught all kids the same content, assuming all kids were 2 or more years behind in math, science, and social studies. The neuropsychologist’s reports became the basis for their attorney’s argument to the school district that they were not providing FAPE (free, appropriate public education) to Sadie, as she was required to be taught content appropriate to her ability level but at a slower pace and with more repetition than in the general education classroom. In the meantime, Sadie’s parents began to visit some local private schools that serve children with dyslexia (recommended by their neuropsychologist as a good match for Sadie’s profile). After many months of Team meetings and additional services bringing about no changes, their attorney built a legal case for Sadie to be placed in a special education private school for students with dyslexia. They filed for a hearing with the Board of Special Education Appeals (BSEA). Sadie’s parents described that “once the date was set, it was as if the school district began to take things more seriously. Our lawyer and the school’s lawyer negotiated a settlement through a series of phone calls. This was expensive, but less than it would have cost to go to a full hearing!” Because Sadie’s settlement agreement was confidential, her parents cannot tell others what percentage of the private school tuition is paid by the school district, and how much the parents have to pay. “We would have loved for the district to have paid more of the tuition plus transportation costs, but our attorney said that school districts rarely do that when they offer their own Language Program. So we are happy with the way things worked out.”
Challenges of the placement
“The private school is located far from our home, so transportation is the hardest part. Sadie’s days are longer because of the 45 minute commute and having to get up so early. But she is much happier at school; she hardly complains at all! Also, seeing her new friends is difficult because some live far from us. We make sure to schedule time for her to see her old friends on weekends.”
Benefits of the placement
Sadie is completely in charge of completing her homework! The school’s rule is that parents are not supposed to help with homework. Sadie’s parents were relieved to see that this worked: “It has completely changed our quality of life at home and improved our relationship with Sadie, to not have homework battles and crying episodes every night!” Sadie’s parents recalled with some laughter and anger that at one point, teachers told them that Sadie’s crying and anxiety at public school were primarily the result of poor coping skills and added an emotional goal to her IEP. “But when Sadie began attending the private school, her crying episodes and anxiety improved and she no longer required therapy. It is wonderful to see her happy again!”
How Parents Coped
Sadie’s parents attended their school district’s Dyslexia Parent Group to learn more about others’ experiences at school. Many parents were happy with the in-district services, and their kids were doing well. “Only a few other parents and kids were struggling as we were and seeking other placements. Finding our peer group helped us figure out what Sadie needed and realize that she wasn’t succeeding as other students were.”
Advice for Other Parents
“Don’t wait too long to get private testing. That was really the game changer in terms of our learning what she needed and finding the right placement for Sadie. We wish the whole process of trying new things didn’t take so long. Our lawyer told us that these placements take time, because the burden of proof is on parents to show that the school really tried everything but is still not providing FAPE. It’s frustrating that the process was so complicated and so long. I would tell other parents to be patient and to try everything the school district offers. I know other parents whose kids did great in the Language Program...I wish it could have worked for Sadie too.” Her parents also said that “when times were tough, it was tempting to view the school as incompetent and not doing enough. But most teachers were wonderful. They really tried their best and were dedicated to Sadie’s learning and well-being. We kept our interactions with them as collaborative as we could - even when we were upset that they couldn’t make school a better experience for her.”